Monday, January 16, 2012

Ulcerative Colitis Questions?

I was diagnosed in January with UC. I was immediately put on Balsalazide alone which did nothing and then the steroid enemas which did nothing. We then moved to prednisone 39mg. and that seemed to do the trick after a few weeks. I was even able to eat most foods for a while. Once we changed to 10mg of prednisone and I had some added stress in my life in March, I went downhill to worse than when I started. I was constantly in the bathroom and the stomach pain was like childbirth. I finally went into hospital for three days to try to get this under control. I was dehydrated but my blood count was normal. I have changed over to Asacol and am back on 30 mg of steroids. I tried Lialda but it made me nautious. I just today was able to go 7 hours without running to the bathroom and it was so liberating. I have been off work for a few weeks and don't know if I can go back next week. This disease is so unpredictable and can turn anyone into an agoraphobic. I was wondering if anyone has experienced hair loss with their meds? My doc says he never heard of that but I have been losing alot of hair since I have been on meds. As for foods to eat, it really did not seem to matter what I ate during a flare up but white rice, baked potatoes and cream of wheat were staples in my diet. I so feel for you. I know you feel like you are the only one with this disease. Unfortunately, it does not seem like there are too many cures for this, and that alone is a stresser we don't need. Let me know if you have any other questions and I hope u are feeling better.

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